In this world we live in, experiencing the birth of a child is beyond any emotional understanding. We crave the excitement and milestones that are set from each passing day for nearly ten months until that child graces our presence away from the womb. Envisioning a perfect world with a perfect pregnancy is what many people live for, sharing their love and building a life that will once touch the lives of others. No one is ever prepared for trouble, no one is ever prepared for fear and no one...Read Full Story
That is all I can really say about the memorial. It was just beautiful! We had over 200 people come to celebrate Kayleigh's life with us. We had support from as far as California and we couldn't be more thankful to all the people who were there. It was a such a blessing. To recap the memorial so many of you who were not able to make it will get a chance to see what went on. The memorial started off with Brian Carpenter (Aubrey Carpenter's husband) sharing our relationship and opening up in...Read Full Story
Okay, today was a busy day and my head is spinning in a million different directions. Aimee and I have been faced with a tough decision, but we feel God is leading us in the right direction.We sat down with one of our neonatologists, our cardiologist NP, our primary nurse and a couple other NP's and discussed a new medication that will take place of Kayleigh's Flolan, which treats her Pulmonary Hypertension. The name of the medication is called Remodulin. Unlike the Flolan's three to five...Read Full Story
This is one of our favorite dresses that Kayleigh's has. She looks so precious and they have these pink shorts (or should I say undies) that go with it too.As of right now, they have decreased the Flolan for her hypertension over the past two days. They are dropping it 10% each time, and they suspect it will take at least 10 days for her to completely come off of it. Our estimated time for coming home is no less than three weeks, which we were not happy to hear and there unfortunately are no...Read Full Story
Aimee and I just got back from the hospital and right now Kayleigh is in a somewhat stable position. She is still breathing hard, desatting and gets very irritated by any touch or movement. The doctors are not quite sure what the cause of this is yet, but they are treating her as if she has an infection of some sort. If that is ruled out, then we continue to look for problems.Her echocardiogram came back early this morning and her pressures were as high as they were before her surgery, which...Read Full Story
Politicians still hope for budget miracleSacramento BeeReader comments on Sacbee.com are the opinions of the writer, not The Sacramento Bee. If you see an objectionable comment, click the "Report Abuse" link below it. We will delete comments containing inappropriate links, obscenities, hate speech, ...and more »
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StandardNetAhearn left his premature baby for an opportunity with JazzStandardNetBy Jim Burton She was born March 19 in St. Louis, 5 1/2 weeks premature and weighing slightly over four pounds. She's still in the newborn intensive care unit, but her weight is up nearly a full pound. Her mother, Ricki, is taking good care of her ...and more »
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After 3 months in to our pregnancy, Aimee and I received the bad news that our baby was not going to survive the pregnancy. We met with numerous Doctors who felt it was only a matter of time before she was going to die. We were told to live our life as normal as possible and there was nothing we could possibly do. One Doctor even said to go home...more
After 3 months in to our pregnancy, Aimee and I received the bad news that our baby was not going to survive the pregnancy. We met with numerous Doctors who felt it was only a matter of time before she was going to die. We were told to live our life as normal as possible and there was nothing we could possibly do. One Doctor even said to go home and drink a glass of wine and to go exercise if we feel that would make us feel better. The Doctors seemed to be more concerned with our mental capacity on how we are going to handle our baby’s death. If we heard, “This is not your fault” one more time, we were going to go insane.
I don’t think there was an illness that Kayleigh wasn’t diagnosed with. Our baby was diagnosed at very high risk of Down Syndrome, Spinabifida, other possible Chromosomal Abnormalities, Cardio Effusion, A hole in the heart, Liver and Bowel diseases, and Aimee had a partially torn placenta which prevented normal growth and the cause a handful of other issues. By the sounds of all that from a professional who sees these issues everyday, what could we do? If we didn’t have God in our lives to help our decisions, we would have terminated the pregnancy in a heart beat because this baby may not survive and if it does, it will live a horrible life. We couldn’t argue with a Doctor, someone with a superior level in the educational field, the highest paid care provider who is supposed do whatever it takes to save lives. They said there was nothing we could do. They were wrong!
Kayleigh Anne Freeman was born at 28 weeks, 10 inches long, weighing 470 grams (1 lb.1 oz). She has no chromosome abnormalities, no liver, no bowel and no other issue that will cause her to live a different life. What if we listened to the Doctors? What if we terminated the pregnancy?
Kayleigh's website will show people there is hope, there is a chance, and there is life. While Aimee and I were going through this roller coaster of emotions, we met some of the most wonderful people in the world. They helped us by sharing their miracle stories to show us that God is in charge and no matter what a doctor told us, we weren't giving up. Kayleigh has touched the lives of so many people and with her story, we want to continue to do just that. If people don’t know we are out there to give a helping hand, they may not fight to save the life of their baby. Kayleigh would not be with us if it weren’t for the people who gave us hope and for God, who is always in complete control. So no matter what you are going through, "Kayleigh's Story" will strengthen you. God Bless!
Please visit Kayleigh's Story at www.KayleighAnneFreeman.blogspot.com