Children's Hospital Los Angeles

History of the CdLS Foundation “...I believe that the pediatrician will...flutter with butterflies, frolic with lambs, coo with babies and retain deep inside something of eternal youth.” – Dr. Cornelia de Lange, 1932 In 1916, Dr. Winfried Robert Clemens Brachmann, a young German physician working at the Children's Hospital in Dresden, wrote a report on a 19-day old infant who had died of pneumonia. His account noted a number of characteristics previously unreported in the history of pediatric...Read Full Story

Human Blood from a Affected person with Eosinophilic Leukemia Photographic Poster Print, 24×18 Photographic Print Title: Human Blood from a Affected person with Eosinophilic Leukemia Dimensions: 24 x 18 inches Human Blood from a Affected person with Eosinophilic Leukemia is digitally printed on archival photographic paper resulting in vivid, pure colour and excellent detail that is suited for any museum or gallery display. Discovering that excellent piece to match your fascination and...Read Full Story

[Edit] | By Terence Hoey on February 26, 2012 Who would have thought that after returning to Northern Ireland from the bedside of this little boy he would have started a chain reaction of websites for Rare Disease with his blog sites we now can see the world has woken up to the plight of little children like Cavan who has XLP and EBVHLH his fight with these diseases has shown that children all over the world are being let down by goverments not researching into the causes of rare diseases...Read Full Story

The Cavan Tommy Hoey Trust (Ireland) will be taking its Rare Disease Day Road Show To Bangor Co Down Northern Ireland on the 28th April 2012 the Trust holds its rare disease day every year for the past four years but it has decided to also hold road shows to raise awareness across Northern Ireland the trust feels that awareness needs to get out into the public to help the People of Northern Ireland know and to understand about Rare Diseases and the effects it has on the family unit. The...Read Full Story

[Edit] | By Terence Hoey on March 2, 2012 The Cavan Tommy Hoey Trust held its Rare Disease Day on the 29th Feburary 2012 it was a great night where families were able to express just how difficult it is to have a child diagnosed with a rare disease they spoke of how it has blown their family apart and sometimes causes the marriage to break down due to the added pressure it causes on the family and family circle this is somthing that was high lighted at the meeting. Rare Disease also causes...Read Full Story