Cornelia Stein

Jamie is a little boy we have known since he was born, we have known his mum Carla most of her life, Jamie's grandparents George and Anna Maria are our very best friends,the one thing we have in common is we have a grandchildwho suffers with a rare disease, you would think this impossible but rare diseases can come to anyones door and the effects on the whole family circle is a living nightmare. From the minute you are told that your little boy or little girl has rare disease the lives of the...Read Full Story

What are the causes of Cornelia De Lange Syndrome? - Treatment Cornelia de Lange syndrome (CdLS) is a syndrome of multiple congenital anomalies characterized by a distinctive facial appearance, prenatal and postnatal growth deficiency, feeding difficulties, psychomotor delay, behavioral problems, and associated malformations that mainly involve the upper extremities.Read Full Story

Get Tickets: 2nd Annual Brew & BBQ for CdLS Event Location: 195 ottley drive, atlanta, gaWhen: Saturday September 24 2011 6:30pm Hosted by: Cornelia de Lange Syndrome FoundationLearn more, view map & buy tickets Music, silent auction, beer sampling, brewery tours and BBQ dinner. All proceeds benefitting the national Cornelia de Lange Syndrome Foundation. …Read Full Story

Wikizines are interactive magazines that anyone can create or edit - and this one is about Cornelia Stein. Here you can find fresh voices and respond in real time. Some members write articles about recent news and trends related to the wikizine's topic, others recount relevant personal stories or share their favorite pictures and video clips. Got an interesting idea or story to share with other members of this wikizine? Well, then put on your journalist's cap and add your own article!Read Full Story