'Power of Two' is twin tale of survival, organ donation

By Glenn Matsuki on  From donatelife-organdonation.blogspot.com
Argus Leader | Joe SnevePhoto: Anabel Stenzel (left) and Isabel Stenzel Byrnes talk with Jim Dresch before the showing of the documentary 'The Power of Two' at the Washington Pavilion on Friday. The documentary was presented by Filmdrome and is about the twins from Japan with cystic fibrosis who survived lung transplant surgery. / Jay Pickthorn / Argus LeaderFilm explores bond, life with cystic fibrosisTwo heavy hitters in the world of organ donation visited Sioux Falls on Friday.About 290...Read Full Story

James Wesley Added To Line-Up For SiriusXM “The Highway” Presents A Concert For Cystic Fibrosis

By countrymusicislove on  From countrymusicislove.com
Broken Bow recording artist James Wesley has been added to the line-up for SiriusXM “The Highway” presents A Concert For Cystic Fibrosis, June 7th at The Wildhorse Saloon in Nashville, TN. Lauded for his energetic live shows, Wesley has two Top 25 singles under his belt – “Real” and “Didn’t I.” Wesley’s “Real” music video reached No.1 on CMT’s Pure 12-Pack Countdown and “Didn’t I” peaked at No.2. The Mound Valley, KS native’s “Jackson Hole” was also a Top 40 hit. Wesley supported Taylor Swift...Read Full Story

Cambridge Music Collective Dowsing for Sound Supports the Cystic Fibrosis Trust - UK

By Glenn Matsuki on  From donatelife-organdonation.blogspot.com
PR WebDowsing for SoundDowsing for Sound has chosen to support the Cystic Fibrosis Trust with a contribution from its Corn Exchange gig on the 16th of June because it has singers affected by Cystic Fibrosis.Cambridge, Cambridgeshire, UK (PRWEB UK) 30 May 2012Dowsing for Sound’s charity choice is no random pick.Dowsing for Sound is a Cambridge music collective of 60 voices and a ripping house band. This year, on the 16th of June, the group is performing at the Corn Exchange in a line up which...Read Full Story

Thompson Square & Randy Houser to Perform Cystic Fibrosis Benefit During CMA Fest

By Jessie Lynn on  From countrymusictattletale.com
The Broken Bow Label Group is pleased to announce A Concert for Cystic Fibrosis, presented by SiriusXM “The Highway,” taking place in the heart of downtown Nashville at The Wildhorse Saloon during the 2012 CMA Music Festival on Thursday, June 7. Hosted by SiriusXM “The Highway” on-air personality Buzz Brainard, the one-night-only event will feature performances by Thompson Square, Randy Houser, Country rock band Parmalee and American Idol’s Kristy Lee Cook. General admission tickets are $10...Read Full Story

Faces Of Cystic Fibrosis

By Jim Chin on  From buzzfeed.com
Photographer Kyle Monk partnered with the Cystic Fibrosis Foundation to create these stunning portraits of children with Cystic Fibrosis. After participating in the Great Stride National Walk Event for Cystic Fibrosis, photographer Kyle Monk knew he had to do more to help. After the event, he got an idea of how to contribute to the cause: create engaging/striking portraits of those suffering from CF. View Entire List ›Read Full Story
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Biggest Loser” Contest To Benefit Cystic Fibrosis Foundation
Over 30 members of PTS competed in the contest with the entry fee being a donation to the Cystic Fibrosis Foundation to raise money for GREAT STRIDES, which is the Cystic Fibrosis Foundation’s largest and most successful national fundraising ...  
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UCSF advances fight against cystic fibrosis
Six-year-old Tom Rolefson is prone to tonsillitis. When he's suffering from a sore, swollen throat, feeling uncomfortable and fatigued, he sometimes says to his twin sister, "Taylor, you're so lucky you don't have this."...  
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"Titanic Chef Throwdown Against Cystic Fibrosis"
Chef Michael McDonald leads evening promising "a modern interpretation of the historic eight-course fine dining menu" of the R.M.S. Titanic. Participating chefs: Isabel Cruz (Barrio Star), Brian Malarkey (Gingham), Augustin "Augie" Saucedo (Sycuan Casino ...  
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Walking for cystic fibrosis
Cystic fibrosis is "the No. 1 genetic disease killing children,'' says Stephanie Karlo, executive director of the Greater New Jersey chapter of the Cystic Fibrosis Foundation. Yet, because it is an "orphan disease'' — fewer than 200,000 people are affected — it is considered too rare to be a priority for big research dollars.  
From app.com ()
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Kalydeco Recommended For Treatment Of Cystic Fibrosis
About 60,000 Europeans suffer from cystic fibrosis, a rare and life-threatening genetic disorder that is caused by a mutation of the CFTR gene, which regulates salt and water transport in the body. The CFTR mutation in cystic fibrosis patients allows too much salt and water into cells, which results in a build-up of thick, sticky mucus in the body's tubes and passageways that damage the lungs, digestive system and other organs. Symptoms...  
From medicalnewstoday.com ()
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