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UCSF advances fight against cystic fibrosis
Six-year-old Tom Rolefson is prone to tonsillitis. When he's suffering from a sore, swollen throat, feeling uncomfortable and fatigued, he sometimes says to his twin sister, "Taylor, you're so lucky you don't have this."...  
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Biggest Loser” Contest To Benefit Cystic Fibrosis Foundation
Over 30 members of PTS competed in the contest with the entry fee being a donation to the Cystic Fibrosis Foundation to raise money for GREAT STRIDES, which is the Cystic Fibrosis Foundation’s largest and most successful national fundraising ...  
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"Titanic Chef Throwdown Against Cystic Fibrosis"
Chef Michael McDonald leads evening promising "a modern interpretation of the historic eight-course fine dining menu" of the R.M.S. Titanic. Participating chefs: Isabel Cruz (Barrio Star), Brian Malarkey (Gingham), Augustin "Augie" Saucedo (Sycuan Casino ...  
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Iwan to run Abersoch 10k in aid of Cystic Fibrosis Trust
Iwan Ellis, 12, from Talysarn, has received treatment for cystic fibrosis since he was just five weeks old. On Saturday, June 9, his uncle Jason Thomas will run the Abersoch 10k race to raise funds for the Cystic Fibrosis Trust – the UK’s only national ...  
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Kalydeco Recommended For Treatment Of Cystic Fibrosis
About 60,000 Europeans suffer from cystic fibrosis, a rare and life-threatening genetic disorder that is caused by a mutation of the CFTR gene, which regulates salt and water transport in the body. The CFTR mutation in cystic fibrosis patients allows too much salt and water into cells, which results in a build-up of thick, sticky mucus in the body's tubes and passageways that damage the lungs, digestive system and other organs. Symptoms...  
From medicalnewstoday.com ()
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65 roses for cystic fibrosis
Predominantly affecting the lungs, pancreas, liver, intestines, and sinuses, CF is a disease of the secretory glands, which are responsible for making mucus and sweat, and for Surf Coast parent Greg Jury 65 Roses Day is especially poignant. His three-year ...  
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Miss Kentucky United States 2012 Supports Great Strides for Cystic Fibrosis...
Andrea Kimberlin, Miss Kentucky Untied States 2012, supported the Cystic Fibrosis Foundation in their Great Strides walk on May 19, 2012. PRLog (Press Release) - May 28, 2012 - Andrea Kimberlin, Miss Kentucky United States 2012, supported the Cystic ...  
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Vertex stock drops on ‘mistake’ in cystic fibrosis results
Investors hammered Vertex Pharmaceuticals yesterday after the Cambridge company revealed it had overstated results from a study of promising cystic fibrosis drugs. “This mistake is very disappointing,” Vertex CEO Jeffrey Leiden said on a conference call.  
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Vertex Corrects Cystic Fibrosis Data; Shares Fall
Vertex Pharmaceuticals Inc released corrected data involving its cystic fibrosis treatments on Tuesday that lowered the number of patients who showed certain levels of improved lung function, sending its ...  
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Jayson Morrison remembered on annual Cystic Fibrosis Walk
Rainy spring weather wasn’t enough to dampen the efforts of some 50 walkers who participated in the fourth annual Cystic Fibrosis walk in Kenora Sunday.[...]  
From kenoradailyminerandnews.com ()
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Vertex Overstated Efficacy of Cystic-Fibrosis Drug
Vertex Pharmaceuticals Inc. said Tuesday it overstated the efficacy of a cystic-fibrosis therapy earlier this month when it reported better-than-expected clinical trial results that had sent its stock price soaring. Shares of the Cambridge ...  
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Vertex plunges on error in cystic fibrosis study
NEW YORK (AP) — Shares of Vertex Pharmaceuticals Inc. plunged Tuesday after the company said it made a mistake in calculating results from a clinical trial of two cystic fibrosis drugs.  
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Vertex Overstates Cystic Fibrosis Drug Benefit
CAMBRIDGE, Mass. (TheStreet) -- Vertex Pharmaceuticals overstated the response to its two-drug cystic fibrosis therapy earlier this month due to a "misinterpretation" of interim data from a phase II study, the company acknowledged Tuesday. Fewer cystic fibrosis patients in the study saw their lung function improve by more than 5% following treatment with VX-809 and Kalydeco than was previously disclosed, Vertex said. Vertex shares slid 13% to...  
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Vertex corrects data on cystic fibrosis treatment
(Reuters) - Vertex Pharmaceuticals Inc released corrected data involving its cystic fibrosis treatments on Tuesday that lowered the number of patients who showed certain levels of improved lung function. The initial mid-stage data, released ...  
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Jeffrey Mark Motorsport Teams Up With The Cystic Fibrosis Foundation...
Jeffrey Mark Motorsport is proud to join forces with the Cystic Fibrosis Foundation and Alexander's Army as they stride toward finding a cure for Cystic Fibrosis. Passionate about helping others, JMM team owner Jeffrey Mark has always known this was an ...  
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Vertex Slammed After Correcting Lower Cystic Fibrosis Trial Data...
Vertex Pharmaceuticals Inc. (Nasdaq: VRTX) is under heavy pressure early Tuesday after correcting data about lung function from a Phase 2 trial of VX-809 and KALYDECO in cystic fibrosis patients sharply lower. Corrected data showed that 35% of patients ...  
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Vertex shares plummet as it revises cystic-fibrosis trial data
Cystic fibrosis is a rare, life-threatening genetic disease affecting approximately 30,000 people in the United States and 70,000 people worldwide. Today, the median predicted age of survival for a person with is approximately 38 years but the median age ...  
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Cystic Fibrosis Data That Sent Vertex Stock Soaring Were Incorrect
Vertex Pharmaceuticals announced this morning that results of a drug combination in cystic fibrosis that have caused its stock to jump 86% since ... to $55.20 in pre-market trading. The data have been much-watched because the new combination ...  
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Vertex Shares Drop on Mistake in Cystic Fibrosis Drug Data
Vertex Pharmaceuticals saw its stock rocket on news earlier this month that its two-drug combo treatment for cystic fibrosis showed a strong benefit in a clinical trial, but the stock is coming back down now that Vertex has come forward to report on a mistake in its own data. Shares of the Cambridge, MA-based biotech [...]  
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NFL Legend Boomer Esiason Spreads Awareness About Cystic Fibrosis Via Twitter...
Since retiring from the NFL after playing for the Cincinnati Bengals, New York Jets, and Arizona Cardinals, Esiason now hosts a live radio show every morning in the Big Apple. And he's not limiting himself to sports. Speaking of the show ...  
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Vertex corrects cystic fibrosis data; shares fall
Even with the placebo patients worsening, the improvement for patients on the Vertex treatments "is much higher than original Street expectations," Schoenebaum ... additional reporting by Toni Clarke in Boston; editing by John Wallace and Maureen Bavdek)  
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Vertex ‘Correction’ to Cystic Fibrosis Destroys Billions in Value
Vertex Pharmaceuticals Incorporated (NASDAQ: VRTX) was very close to 52-week highs of late, but that will not be the case now.  The company updated information that is being called a correction about...  
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Oops! Vertex Pharmaceuticals Incorporated Revises Cystic Fibrosis Combo Data
CAMBRIDGE, Mass.--(BUSINESS WIRE)-- Vertex Pharmaceuticals Incorporated (VRTX) announced today a correction to the previously reported responder analysis, as well as additional data from, the recent interim analysis of an ongoing Phase 2 study of VX-809 and KALYDECO (ivacaftor) that showed significant improvements in lung function (forced expiratory volume in one second, FEV1) among adults with cystic...  
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Garlic Could Benefit Cystic Fibrosis Patients and Others
Now Tim Holm Jakobsen and Michael Givskov of the University of Copenhagen, and their many collaborators have pinpointed a constituent of garlic that attacks a key step in the development of biofilms, in an effort they hope may offer help in particular for ...  
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Meet Miracle Kid Gavin Steel
Doctors not only found a large hole in his heart but Gavin was also diagnosed with cystic fibrosis. Gavin’s father, Jason Steel said, “That combination of problems, the cystic fibrosis and the hole in the heart made it very difficult for ...  
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Kin raise $2,700 for cystic fibrosis research
Kin raise $2,700 for cystic fibrosis research April Lawrence for Community Press Campbellford —The Campbellford Kinettes and Kinsmen held a barbecue and draw here last Saturday to raise money and awareness for cystic fibrosis research.[...]  
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Garlic constituent blocks biofilm formation, could benefit cystic fibrosis...
E Pluribus Unum, the de facto motto of the United States, could just as well apply to biofilm-forming bacteria. Bacterial biofilms are far more resistant than individual bacteria to the armories of antibiotics we have devised to combat them. Now researchers have pinpointed a constituent of garlic that attacks a key step in the development of biofilms, in an effort they hope may offer help in particular for patients with cystic fibrosis.  
From sciencedaily.com ()
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Local cystic fibrosis walk raises $21,000
Today's Great Strides Cystic Fibrosis Walk raised $21,000 for the Cystic Fibrosis Foundation, event chairwoman Brianne Hyatt said.  
From statesmanjournal.com ()
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Local events help raise funds for Cystic Fibrosis Foundation work
In a collaborative effort, CCCF’s Karen Marshall and Jell’s Sports Grill hosted a fundraising event where volunteer waitresses served the restaurant’s customers their food and beverages. All tips and donations from the evening, held Wednesday ...  
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Cystic fibrosis walk raises awareness, collects $21,000
Sunday's Great Strides Cystic Fibrosis Walk raised $21,000 for the Cystic Fibrosis Foundation, event chairwoman Brianne Hyatt said. Despite morning rain, 148 people participated in the 3.2-mile walk through downtown Salem.  
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Walking for cystic fibrosis
Cystic fibrosis is "the No. 1 genetic disease killing children,'' says Stephanie Karlo, executive director of the Greater New Jersey chapter of the Cystic Fibrosis Foundation. Yet, because it is an "orphan disease'' — fewer than 200,000 people are affected — it is considered too rare to be a priority for big research dollars.  
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Helping Kids, Adults As One
The Cystic Fibrosis Institute, 2401 Ravine Way in Glenview, helps those affected by cystic fibrosis, a disease that causes mucus buildup in the lungs and digestive systems. Glenview’s institute is the largest independent cystic fibrosis center in the ...  
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European panel backs Vertex cystic fibrosis drug
Vertex Pharmaceuticals said today it secured a key approval from a European panel for its cystic fibrosis treatment drug Kalydeco The backing from the European Committee for Medicinal Products for Human Use was based on positive results from two clinical ...  
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Redlands joins fight against cystic fibrosis
Photo Gallery: Cystic Fibrosis Great Strides Walk REDLANDS - Sylvan Park was host to the fourth annual Cystic Fibrosis Great Strides Walk on Saturday to raise money and awareness about the debilitating disease. "This is a fundraising event for all the CF families so they can come out and congregate," said Drew Hoyer, development director for the Cystic Fibrosis Foundation, Orange County chapter. "The biggest thing is that the kids can't...  
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Teen battles cystic fibrosis with high hopes and a little magic
Bart, a 16-year-old sophomore from Charlotte, N.C., describes this trick at length -- he calls it "cell phone mentalism" -- and a couple of versions are on YouTube. He says he tried 20 variations before he was happy. In the video, when the kids ...  
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Cystic Fibrosis Foundation Launches "Walk Weekend"
Great Strides is the largest national fundraiser for cystic fibrosis, a fatal genetic disease that causes debilitating lung infections and premature death. There is no cure. More than 10 million Americans are symptomless carriers of a defective CF gene.  
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Yard sale for cystic fibrosis continues today
SALISBURY — For her 83rd birthday, Jane Safrit had lunch in downtown Salisbury with her daughter, Jackie Null, and then they did some shopping. Mother and daughter shopped at a place they discovered last year: Helen Brown’s yard sale. The sale, which ...  
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Personalizing Health Campaigns - The Kyle Monk 'Faces of Cystic Fibrosis...
(TrendHunter.com) Cystic Fibrosis is a genetic disorder that over 70,000 people worldwide live with, including 30,000 in the U.S alone. The Kyle Monk ‘Faces of Cystic Fibrosis' brings a personal touch to...  
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Walkers raised money for cystic fibrosis research
The walk was organized by the Cystic Fibrosis Foundation of South Carolina. Alicia Parsons, the associate director for the South Carolina chapter, said she was overwhelmed with the turnout. "Over 250 people gathered together raising over $66,000 to support ...  
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Madison Hosts Cystic Fibrosis Walk
Great Strides: Taking Steps to Cure Cystic Fibrosis comes to Madison's Surf Club on Saturday, May 19 at 9 a.m. Hosted by the Cystic Fibrosis Foundation Connecticut Chapter, Great Strides...  
From news.search.yahoo.com ()
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A normal boy with cystic fibrosis
THERE are only two cystic fibrosis sufferers in Collie shire, according to Jeremy and Amanda Devos, and their four-year-old son Jaxon is one of them. The condition did not define him, the couple said. They described him as “very active” and a “very ...  
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Roses for Cystic Fibrosis
WERRIBEE’S Sam Ira knows what it’s like to live every day as though it could be his last. Mr Ira, 33, and his older brother have cystic fibrosis, a genetic illness that primarily affects the lungs and digestive system by clogging them with thick ...  
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Local family takes strides for cystic fibrosis
For more about the Cystic Fibrosis Foundation, visit cff.org . CHARLESTON, W.Va. -- When Shannon and Jeremy Balser were married in 2009, they knew they wanted to have children as soon as possible. It was...  
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Next Swimwear Teams Up with the Cystic Fibrosis Foundation for "Next National...
Surfing's new sister sport, Stand Up Paddling provides the same benefits and is less challenging because it is often done in flat water. Today, NEXT Swimwear is proud to announce it has teamed up with the Cystic Fibrosis Foundation to celebrate this sport ...  
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65 Roses for Cystic Fibrosis
Perth sufferers and supporters will band together on Friday May 25 to hunt down roses for a wonderful cause. 65 Roses Day aims to educate and raise much needed funds for Cystic Fibrosis, a life threatening genetic condition. The reason for the name is a ...  
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Great Strides 5K Walk, brat fry to benefit Cystic Fibrosis Foundation...
The annual Great Strides 5K Walk to benefit the Cystic Fibrosis Foundation will be held at 2 p.m. Sunday at Pfiffner Pioneer Park. Registration begins at 1 p.m. Lunch will be served at 2:45 p.m., followed by a basket raffle at 3 p.m. A brat fry ...  
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Cystic fibrosis breakthrough reveals why females fare worse than males...
These mucoid type of Pseudomonas aeruginosa bacteria are coated in a slimy layer which makes them more difficult to treat with antibiotics and more difficult to clear with the body's own natural defences which leads to significant lung inflammation ...  
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Feola, at University of Kentucky, receives NIH grant to study cystic fibrosis...
a University of Kentucky College of Pharmacy faculty member in the Department of Pharmacy Practice and Science, received a five-year, $1.8 million grant from the National Institutes of Health (NIH) to continue his research investigating immune responses in ...  
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65 Roses to Raise Funds for Cystic Fibrosis | TopNews Arab Emirates
In order to raise awareness among people and to raise funds for Cystic Fibrosis, sufferers and supporters in Perth will band together on Friday to hunt down roses for the wonderful cause. Termed as 65 Roses Day, the main ...  
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Cystic Fibrosis Foundation looks to make 'Great Strides' against ...
By Ashley Anderson, Staff Writer | May 9, 2012 11:15 am. The Cystic Fibrosis Foundation “Walk-a-thon”, Great Strides, took place at the Westfield Valencia Town Center this past weekend. Great Strides is the Cystic Fibrosis Foundation's ...  
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65 Roses Day - Raising funds for Cystic Fibrosis
ARARAT - Tin shakers will be out this Friday - also known as 65 Roses Day - to raise funds for Cystic Fibrosis, a cruel disease which affects infants and young people.  
From ararat.yourguide.com.au ()
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Statement from the Cystic Fibrosis Foundation on the House Energy and...
Statement from the Cystic Fibrosis Foundation on the House Energy and Commerce ...MarketWatch (press release)The Cystic Fibrosis Foundation issued the following statement regarding the House Energy and Commerce Committee's Health Subcommittee approval of legislation to include consultation with rare disease experts and patient advocates as part of the US Food ...and more »  
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Young children with cystic fibrosis do not benefit from concentrated saline...
Concentrated saline therapy not effective in young children with cystic fibrosis. NIH-funded study demonstrates importance of conducting pediatric clinical trials Inhaling concentrated saline (salt water) mist does not reduce how often infants ...  
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Inspirational Boy with Cystic Fibrosis Awesomely Dances While Tied to a...
#watchthis Dylan, a boy with Cystic Fibrosis, is an inspiration to us all. While undergoing long and tedious treatments with a breathing machine, Dylan makes the most of his situation by dancing. What an amazing boy. More »  
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Take Great Strides and help Cystic Fibrosis
“Eva also represented our city as Miss New Westminster in 2001 and was a recipient of the Queen’s Jubilee medal in 2002,” said a press release about the Great Strides walk. “Eva’s life was cut short at the age of 25 by Cystic ...  
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UPDATE: Redlands joins fight against cystic fibrosis
REDLANDS - Sylvan Park was host to the 4th annual Cystic Fibrosis Great Strides Walk on Saturday to raise money and awareness about the disease.  
From redlandsdailyfacts.com ()
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Cystic Fibrosis Foundation May 19 Great Strides Walk -- Taking Steps to Cure...
ATLANTA, May 10, 2012 /PRNewswire/ -- The Cystic Fibrosis Foundation – Georgia Chapter will hold its 22nd Annual GREAT STRIDES walk. The event will be held on Saturday, May 19th at the IC Courtyard on the Georgia Tech campus; registration begins at 8:30 a.m., and...  
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Study Evaluates Use of Inhaled Saline for Young Children with Cystic Fibrosis
Margaret Rosenfeld, M.D., M.P.H., of Seattle Children's Hospital, and colleagues conducted a study to examine if hypertonic saline would reduce the rate of pulmonary exacerbations in children younger than 6 years of age with cystic fibrosis (CF).  
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Western Force hooker Nathan Charles has cystic fibrosis but is in line for a...
AT three months of age, Nathan Charles was diagnosed with cystic fibrosis and his parents told not to expect to plan a 10th birthday party. Twenty-two years later, he stands on the verge of representing his country as the only sufferer of the disease on ...  
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With Cystic Fibrosis and Heart Defect, Baby Faces Unique Set of Challenges...
Jason and Christie Steel had no reason to suspect they’d need pre-birth genetic screening for their second son. But the set of conditions with which little Gavin was born was so rare that it left many specialists from around the country stumped.  
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Couple skips anniverary party to raise cash for Cystic Fibrosis
There aren't many universal truths in the world, at least not that I am aware of. But one thing I know for sure is that no parent wants to outlive their child. You want them to grow up and live rich, full, and long lives. So when I heard about a Northern Michigan family that dealt with an incredible loss, and then made the selfless decision to possibly do it again, I had to meet them. This is their story.  
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Study evaluates use of inhaled saline for young children with cystic fibrosis
Margaret Rosenfeld, M.D., M.P.H., of Seattle Children's Hospital, and colleagues conducted a study to examine if hypertonic saline would reduce the rate of pulmonary exacerbations in children younger than 6 years of age with cystic fibrosis (CF).  
From eurekalert.org ()
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West End couple continues cystic fibrosis fundraisers
A West End couple whose son has cystic fibrosis will hold several events around Monroe County this spring and summer to raise money for the Cystic Fibrosis Foundation. Alex and Keri Wunder of Effort hope the money they raise at the golf ...  
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Motorcycle riders gear up for cystic fibrosis
POTSDAM — Every year, Jennifer A. Dean finds herself getting teary-eyed when motorcycles rev up their engines before zooming away from Ton’s Sports Bar for the “Ride to Breathe.” Mrs. Dean, Canton, started the annual motorcycle ride in ...  
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Yard sale for cystic fibrosis next weekend
SALISBURY — For years, Helen Brown has been saying “next year” may be her last. But every year, she gears up along with 25 volunteers and hosts her annual yard sale to benefit cystic fibrosis research. She began the sale about 18 years ago when her ...  
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N Sync - Lance Bass Backing Cystic Fibrosis Campaign
Former 'Nsync star Lance Bass is urging his fans to donate to America's Cystic Fibrosis Foundation to fund research into the genetic disorder. The singer is lending his support to the National Cystic Fibrosis Awareness Month (May12), and he has called on ...  
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Battling Cystic fibrosis
Cameron Bryant strapped on a vest that resembles a life jacket. He attached the tubes to each side, pushing the clasps down to secure them in place. Those tubes are attached to a machine, which vib ...  
From wilsontimes.com ()
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Cystic fibrosis walk returning to Sylvan Park
The Cystic Fibrosis Foundation's Great Strides walk will take place on May 19 at Sylvan Park to raise money and awareness about the debilitating disease.  
From redlandsdailyfacts.com ()
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I found a hero through cystic fibrosis
Volunteering opportunities range from stuffing envelopes, to auction item solicitation, to attending events, to event sponsorship.  If anyone would like to learn more about the Cystic Fibrosis Foundation, or would like to volunteer with the Minnesota ...  
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ChanTest Sponsors Great Strides Walk for Cystic Fibrosis
CLEVELAND--(BUSINESS WIRE)--ChanTest Corporation sponsors May 19 Great Strides Walks in Northern Ohio in support of the Cystic Fibrosis Foundation’s annual fund-raising event. ChanTest employees walk at the Cleveland Zoo.  
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Cystic fibrosis doesn't keep this entrepreneur down
Cystic fibrosis doesn't keep this entrepreneur downSun-SentinelCystic fibrosis is an inherited chronic disease that clogs the lungs, leading to life-threatening infections, and obstructs the pancreas, inhibiting the body's ability to break down and absorb food, according to the Cystic Fibrosis Foundation.  
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Walk in York to battle Cystic Fibrosis
Disarray MagazineWalk in York to battle Cystic FibrosisSeacoastonline.comYORK BEACH — As part of the Northern New England Chapter of the Cystic Fibrosis Foundation's Great Strides fundraising walk, a local York Beach walk will be held Sunday, May 20. The family-friendly event starts at 9 am from the York Beach Fire ...Cystic fibrosis walk returning to Sylvan ParkRedlands Daily FactsCystic Fibrosis Walk This MonthPatch.comWalk against cystic...  
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MJ's Mafia walks for cystic fibrosis
The Northern Ohio Chapter of the Cystic Fibrosis Foundation sponsored a Great Strides Walk on Saturday at McKinley High School. Friends and family came together as MJ's Mafia in support of Marcus Metz, 1, of Alliance, who has cystic fibrosis. He is the son ...  
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Walk raises cystic fibrosis awareness
The Grand Rapids Press - MLive.comWalk raises cystic fibrosis awarenessThe Hillsdale Daily NewsMore than 50 showed up at the Litchfield track Saturday morning for the second annual Cystic Fibrosis Foundation's Great Strides event. Sponsored in part by the school's National Honor Society, the occasion came close to raising the goal of $10000, ...MJ's Mafia walks for cystic fibrosisCanton RepositoryHow Lake County family became fundraising...  
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Vertex Pharmaceuticals Receives European CHMP Positive Opinion for...
CAMBRIDGE, Mass.--(BUSINESS WIRE)--Vertex Pharmaceuticals Incorporated (Nasdaq: VRTX) announced today that the European Committee for Medicinal Products for Human Use (CHMP) has issued a positive opinion by consensus recommending the approval of KALYDECO (ivacaftor) for people with cystic fibrosis (CF) ages 6 and older who have at least one copy of the G551D mutation in the cystic fibrosis transmembrane...  
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2 Reasons That Cystic Fibrosis Trumps Hep C
Vertex Pharmaceuticals (Nasdaq: VRTX ) is up more than 70% after announcing positive data for its new drug combo to treat cystic fibrosis last week. That kind of jump isn't uncommon for development-stage drugmakers, but it's quite an increase ...  
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Monkeys to test cystic fibrosis cure
Patients might simply use inhalers to get a genetically altered cold virus into their lungs and reverse the abnormalities that cause the disease. But it's not known how long the treatment is effective, and patients may have to repeat it. "It would not be a ...  
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Entrepreneurial sisters and courageous nine year old take on cystic fibrosis
Nine-year-old Jada Fifer’s battle with cystic fibrosis has inspired her entrepreneurial mother and aunt to create Shop for the Cure to raise money for the Cystic Fibrosis Foundation.  
From tri-statedefenderonline.com ()
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Fundraisers May 5 for Cystic Fibrosis Foundation in memory of Burlington native
WATERFORD — Two events will be held in memory of the late Lawrence Moss II on Saturday, May 5, to benefit the Cystic Fibrosis Foundation. The Burlington native died from this disease on June 2, 2011, at age 27.  
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Cystic Fibrosis Great Strides Walk
This year Tri-Cities walkers raised fifty thousand dollars for Cystic Fibrosis research. Cystic Fibrosis Foundation's Washington Chapter representative, Megan Talbot, said the event isn't only a fundraiser but also a way for families struggling with ...  
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Lexington Great Strides Walk benefits cystic fibrosis research
The event will feature a 3-mile loop through Lexington Center and will start and finish at the Hayden Recreation Centre lower field ... entertainment, balloons and a DJ will be on hand at the lower field for all to enjoy. In the past 10 years, the ...  
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Chicago IT Support Firm, Aqueity Inc. is participating in the Cystic Fibrosis...
Additionally, they also provide IT managed services for their growing client base. On May 19th the Aqueity team will join forces with ‘Nathaniel’ s People’ in a 3 mile walk in Naperville, IL starting at the Naperville Riverwalk. This event supports ...  
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Cystic Fibrosis Pub Crawl Takes Over Downtown
After checking in at the Pioneer Building on Sixth and Main streets, revelers flooded downtown to imbibe for a cause. April 28 marked the third-annual Crawl Around Downtown, a pub crawl designed to benefit the Cystic Fibrosis Foundation.… [ Read more ] [ Subscribe to the comments on this story ]  
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65 Roses Car Show Raises $3,000 for the Cystic Fibrosis Foundation
The 65 Roses Classic Car Show happened on April 21st despite morning showers and cool temperatures. This was a 100% benefit to raise money for the Cystic Fibrosis Foundation. The show raised $3,000 for the Cystic Fibrosis Foundation. Guests were ...  
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Chefs in the City Prepare Five-Course Meals Benefiting Cystic Fibrosis...
Chefs in the City grew this year from 12 chefs at the inaugural event to 20 chefs, including Citronelle's Michel Richard, Erik Bruner-Yang from ramen spot Toki Underground, Kevin Miller from Baltimore catering company Copper Kitchen, Ris Lacoste ...  
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Boston scientists grow lung tissue from cystic fibrosis patients’ skin cells
Two teams of Boston scientists have developed new ways to turn stem cells into different types of lung tissue, surmounting a major hurdle for scientists trying to harness the power of stem cell biology to study and develop treatments for major lung diseases. One team then used skin cells from cystic fibrosis patients to create embryonic-like stem cells, then working in lab dishes used those ...  
From news.search.yahoo.com ()
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Mary Weiss celebrates FDA approval of Kalydeco to treat cystic fibrosis
If there is anyone who deserves to cheer over a new development that could extend the life of children with cystic fibrosis, it’s Mary Weiss.  
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Tossing back a few, beanbags that is, to help fight cystic fibrosis
Up a curved path at a home in Mount Pleasant, the front yard was turned into a battle zone of flying bean bags as players tossed their way to cornhole greatness and raised money for the Cystic Fibrosis Foundation.  
From news.search.yahoo.com ()
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Walk Saturday in Ogdensburg will benefit cystic fibrosis research...
OGDENSBURG - Breathing is something that most people take for granted. But for Owen Benjamin Provencher, every breath is precious. Owen, 4, suffers an incurable genetic disease called cystic fibrosis. Thick, sticky mucus clogs his lungs ...  
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New drug tames Yonkers teen's cystic fibrosis; Thiells woman hopes to be next
The first clue Theresa McMahon had that the experimental drug her daughter was taking was having an effect was silence in her home early in the morning. "When she would wake up, I would hear her coughing like a 40-year smoker," the Yonkers woman recalled of her 15-year-old daughter, Annie. "Now, nothing."  
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Statement from the Cystic Fibrosis Foundation on Senate HELP Committee's...
Beall, Ph.D., president and CEO of the Cystic Fibrosis Foundation: "On behalf of the tens of thousands of Americans with cystic ... as part of a legislative package to reauthorize the FDA's system for evaluating new prescription drugs and devices.  
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Big Apple Bagels plans benefit for Cystic Fibrosis Foundation
DEERFIELD, Ill. — Big Apple Bagels soon will present its Great Strides campaign to benefit the Cystic Fibrosis Foundation. Throughout the month of May, customers can purchase Great Strides pin-ups at their local Big Apple Bagels, with 100 ...  
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Fundraisers May 5 for Cystic Fibrosis Foundation in memory of Burlington...
Haircuts will cost $10 (no shampoos, styles, or major overhaul haircuts). Purple hair extensions can be purchased for $7. Activities include children’s games and face painting, raffles, silent auctions, a mini petting zoo, music by a DJ and food.  
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Cystic fibrosis doesn't keep Westlake kindergartner down
Little boys love to run around, play with their friends at school and basically enjoy being a kid. Porter Chatterton is no different and his family makes sure the six-year enjoys every minute.  
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‘Celebrity doodles’ help raise money for Cystic Fibrosis
When Becky Gomes of Pittsburgh attended the ArtiGras festival in Jupiter, Fla., several years ago, she saw colorful doodles, drawn by well-known celebrities, that were being auctioned off. “That is just brilliant!” she thought. “Why don’t I do that for Cystic Fibrosis?” Becky is on the Board of Directors for the nonprofit and got [...]  
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11-Year-Old In Danvers Arranges Walk For Cystic Fibrosis
May is Cystic Fibrosis Awareness month, and 11-year-old Bailey Witham helped arrange a walk-a-thon at his school, Great Oak School.  
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West Siders walking to help find cure for cystic fibrosis
The Delhi Township mother’s twin sons, Keith and Kyle, have cystic fibrosis, and for 27 years they’ve been overcoming obstacles from a disease that causes problems in the lungs due to mucus in the body becoming thick and sticky. Connolly and ...  
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Penarth AM raises awareness of Cystic Fibrosis Week
Penarth AM raises awareness of Cystic Fibrosis WeekPenarth TimesPENARTH Assembly Member Vaughan Gething visited Llandough Hospital and took part in a lung test to help raise awareness during Cystic Fibrosis Week. The AM had his lung function tested to see how his result compared with someone with CF, to highlight ...  
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Gordon Brown and cystic fibrosis, Tony Blair ...
There's a distinction to be made here, though, with another episode I cover in The Geek Manifesto. I'm talking, of course, about the Blairs' refusal to answer questions about whether their son Leo had had the MMR vaccine.  
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Pasco family organizes bake sale for cystic fibrosis research
A bake sale to benefit 11-year-old cystic fibrosis patient Nathan Finke will be from 8 a.m. to 1 p.m. Saturday at Yoke’s Fresh Market, 4905 Road 68, Pasco. Nathan's family and friends will travel to Spokane on June 2 to participate in Great ...  
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Parents sue sperm bank over child's cystic fibrosis
Parents sue sperm bank over child's cystic fibrosis39online.comJaxon was born with cystic fibrosis – a genetic, chronic disease that affects the lungs and digestive system. The Kretchmars had used a sperm donor to conceive Jaxon. Donor n-170 that had supposedly been tested for cystic fibrosis, which they used a ...  
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The Salt Suite Joins Fundraising Effort with The Cystic Fibrosis Foundation...
PR Web (press release)The Salt Suite Joins Fundraising Effort with The Cystic Fibrosis FoundationPR Web (press release)However, The Cystic Fibrosis foundation is working diligently to raise money and awareness. The Great Strides walk is their largest fund-raising event. This is a great opportunity to gather friends and family to show support for a worthy cause.Sock Hop for cystic fibrosisEscanaba Daily PressPeterborough's 2012 Great Strides...  
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Game-changer’ in fight against cystic fibrosis
In a clinical trial, Vertex Pharmaceuticals in Cambridge found that a combination of its drug Kalydeco, which won federal regulatory approval only four months ago, and the experimental drug VX-809 substantially improved breathing for some cystic fibrosis patients.  
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Carlisle salon to host event in support of Cystic Fibrosis Foundation...
The enzymes come in pill form, which Cordero has to break open and put on applesauce ... To help out the little trooper, Cordero’s co-workers at the 5th Avenue Full Service Salon in Carlisle, where she is a hair stylist, are organizing a team for ...  
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Sister walks to fight cystic fibrosis in memory of her sister
Sister walks to fight cystic fibrosis in memory of her sisterThe Times HeraldCystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30000 children and adults in the United States and 70000 worldwide, according to the Cystic Fibrosis Foundation. A defective gene and its protein ...Big Issue: Living with cystic fibrosisThis is Gloucestershireall 3 news articles »  
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Big Apple Bagels to fight cystic fibrosis
Three Green Bay-area Big Apple Bagels stores will participate in the company's campaign to benefit the Cystic Fibrosis Foundation. During May, customers can purchase Great Strides pin-ups at their local Big Apple Bagels. For a donation, patrons ...  
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National Bagel Sale in Support of Cystic Fibrosis Foundation
Big Apple Bagels® is holding their National Bagel Sale event on Friday, April 27, 2012. For one day only, customers can come in to our Waite Park store and purchase delicious made-from-scratch bagels for only 49-cents with the coupon (limit 12).  
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Faces of Rare Disease: Cystic Fibrosis
Faces of Rare Disease: Cystic FibrosisKPLC-TVWhen there is a mutation in a gene on this chromosome, it is known as "cystic fibrosis." In this "Faces of Rare Disease" story, we introduce you to little Landon McKee of Iowa, living with this chronic disease. 22-month-old Landon McKee loves stories, ...  
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Respiratory Viruses in Children With Cystic Fibrosis
Background Viral detection from different respiratory sample types in children with cystic fibrosis (CF) is facilitated by available molecular methods, but optimum sampling strategies have not been identified. In addition, associations between ...  
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Gordon Brown denies approving cystic fibrosis story
BBC NewsGordon Brown denies approving cystic fibrosis storyBBC NewsRebekah Brooks, told the Leveson Inquiry she had the express permission of the Browns to run it. But the Browns have said that "at no stage" was their permission sought. Mrs Brooks, the former chief executive of News International, told the inquiry ...Rebekah Brooks: Fraser Brown story sourced via legitimate meansJournalism.co.ukGordon Brown denies Rebekah Brooks's claims over...  
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Vertex Pharmaceuticals Soars on Cystic Fibrosis Drug Study
MINYANVILLE ORIGINAL Vertex Pharmaceuticals (VRTX) stock surged almost 50% Monday after the company said a combination of two drugs helped cystic fibrosis patients' lungs work better in a study. If the positive results hold up after additional testing it's a significant development that potentially increases the likelihood of approval for the drug combo and raises expectations for potential sales. Shares of Vertex rose 47% to $55.10 in midday...  
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Cystic Fibrosis patient heads up Great Strides
Portsmouth NewsCystic Fibrosis patient heads up Great StridesThe Daily News JournalAll proceeds from the walk will benefit the Cystic Fibrosis Foundation and its research to find a cure. Bachman's story is unique, however, as he was diagnosed at birth with cystic fibrosis, the most common fatal genetic disease in the United States, ...CCC program making 'Great Strides' for cystic fibrosis researchIronton TribuneDebbie and Emma are having a...  
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Vertex sees premarket jump on new cystic fibrosis data
Vertex Pharmaceuticals (Nasdaq: VRTX) investors had a premarket feeding frenzy Monday, after Vertex released preliminary Phase 2 data showing that a combination of two cystic fibrosis (CF) drugs improved some patients’ lung function by 10 percent.  
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Cystic Fibrosis Drug Bronchitol Approved, EU
According to Pharmaxis, Bronchitol, a new cystic fibrosis treatment, has been granted EU approval for patients aged 18 years and older as an add-on therapy to the best standard of care in 29 European countries. Dr. Alan Robertson, CEO of Pharmaxis announced: "This is a very significant event, which means that patients living with cystic fibrosis in Europe will now be able to receive the proven clinical benefits of Bronchitol...  
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A Cystic Fibrosis Treatment Is Called ‘Game-Changing’
A combination of a cystic fibrosis drug and an experimental treatment for the disease, both developed by Vertex Pharmaceuticals, led to significantly improved breathing ability in a midstage study, the company said on Monday. The data suggested ...  
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Cystic fibrosis fundraiser scheduled Friday
Cystic fibrosis fundraiser scheduled FridaySand Mountain ReporterCystic Fibrosis Awareness Week is the second week in May, and organizers of a barbecue fundraiser hope Sand Mountain residents enjoy a meal and support the CF Foundation like they did in 2011. Last year, the event raised more than $2100 for the Alabama ...  
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Vertex’s Cystic Fibrosis Therapy Is Called ‘Game-Changing’
The data suggested that Vertex could have a multibillion-dollar franchise in treating cystic fibrosis, a life-threatening genetic disorder that affects about 70,000 people worldwide.  
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Vertex Cystic Fibrosis Combo Aids Breathing in Patients
Vertex Pharmaceuticals Inc. (VRTX), maker of the first medicine to target the underlying cause of cystic fibrosis, rose 51 percent after the drug and a second therapy helped improve patients’ breathing ability. Vertex climbed to $56.52 at 9:09 ...  
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Vertex shares jump 60% premarket on new data for cystic fibrosis drug Kalydeco
Vertex Pharmaceuticals (Nasdaq: VRTX) investors had a premarket feeding frenzy Monday, after Vertex released preliminary Phase 2 data showing that a combination of two cystic fibrosis (CF) drugs improved some patients’ lung function by 10 percent. The data is an inflection point for the Cambridge, Mass.-based biotech, which has had two drugs approved within the space of a year, because it would greatly increase the numbers of CF patients who...  
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Dedham walk seeks to raise funds for a Cystic Fibrosis cure
Robert Coughlin, Bobby was born with Cystic Fibrosis ... But before the Dedham family left, Bobby’s chest physical therapist, Cathy Baublitz paid a visit. Baublitz listened to Bobby’s breathing in order to hear if mucous building was affecting his ...  
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Vertex shares soar on cystic fibrosis drug data
Cystic fibrosis causes the thin layer of mucus that helps keep the lungs free of germs to become thick, clogging airways and leading to infections that damage the lungs. The average life expectancy for the disease is 37 years, as damage to the ...  
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West End couple continues fundraisers
A West End couple whose son has cystic fibrosis will hold several events around Monroe County this spring and summer to raise money for the Cystic Fibrosis Foundation. Alex and Keri Wunder of Effort hope the money they raise at the golf ...  
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National Muffin Sale in Support of Cystic Fibrosis
DEERFIELD, Ill., May 2, 2012 – My Favorite Muffin® will hold their National Muffin Sale event on Thursday, May 17, 2012. For one day only, customers can purchase delicious gourmet jumbo muffins at thirteen of our stores (see list below) for only 89 ...  
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Fundraiser to help CNY Cystic Fibrosis Foundation
Cystic fibrosis affects about 30,000 children and adults in the United States. Monday night, the Savoring Cystic Fibrosis event will take place at the Crowne Plaza Hotel in Syracuse to help the CF Foundation of Central New York. Our Brad Vivacqua has a preview.  
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Bodybuilding Cystic Fibrosis sufferer wins first title
HE transformed himself from a seven stone weakling into an iron-pumping powerhouse, intent on becoming the first-ever cystic fibrosis sufferer to enter a bodybuilding contest. And now Jonny Simpson has gone one better. . . he’s won a competition!  
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Annual CF Gala To Feature Live Music, Disney Channel Star
Saturday brings a unique fundraiser in the battle to combat cystic fibrosis. Hosted in the backyard of Kelley and Casey Brownlow in Tyler, the annual 65 Roses Gala will raise money for the Cystic Fibrosis Foundation and put toward cystic fibrosis research.  
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Vertex Pharmaceuticals Incorporated Soars as Cystic Fibrosis Drug Regimen...
Vertex Pharmaceuticals Inc. (VRTX), maker of the first medicine to target the underlying cause of cystic fibrosis, gained the most ever after a combination of that drug and a second therapy improved patients breathing ability. Vertex climbed 41 percent to $52.57 at 9:32 a.m. New York time, after touching $53.94 for the biggest intraday increase since the companys shares began trading publicly in...  
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Vertex: Two-Drug Cystic Fibrosis Therapy Improves Lung Function
if !IE-->endif-->Content on this page requires a newer version of Adobe Flash Player.if !IE-->endif--> Updated with stock price, analyst reaction. CAMBRIDGE, Mass. (TheStreet) -- Vertex Pharmaceuticals released preliminary data Monday showing two drugs -- the experimental VX-809 and currently marketed Kalydeco -- significantly improved lung function in patients with the most common genetic mutation causing cystic fibrosis...  
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Raising awareness of cystic fibrosis
Raising awareness of cystic fibrosisMyrtleBeachOnline.comN., Myrtle Beach, at Grissom Parkway The Cystic Fibrosis Foundation's SC chapter likes to go to bat and hoof it for its cause every spring. Based in Mount Pleasant, the chapter will have its third annual awareness night with the Myrtle Beach Pelicans ...  
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Vertex Shows Signs of Effect With Two-Drug Combo for Cystic Fibrosis
Vertex Pharmaceuticals wowed the cystic fibrosis community earlier this year with its new drug that improves lung function for patients with a rare form of the inherited disease. Now it’s gathering evidence that it could extend the drug’s benefits to many more people. The Cambridge, MA-based company (NASDAQ: VRTX) is announcing today that a combination [...]  
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American Idol Tickets Auction to Benefit Cystic Fibrosis Foundation
Following up their successful t-shirt fundraiser benefiting the Cystic Fibrosis Foundation through the sale of custom t-shirts, Emily’s Entourage is now holding a bid on American Idol tickets. Screen printers Rush Order Tees prints many t-shirts for ...  
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Help Pasco family fight Cystic Fibrosis
The Meddaugh family is rare in that their two children both have Cystic Fibrosis.  They are participating in the annual Cystic Fibrosis Great Strides Walk in Homosassa.  
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Cystic Fibrosis Foundation Awarded First Place in YouTube Nonprofit Video...
Cystic Fibrosis Foundation Awarded First Place in YouTube Nonprofit Video ContestMarketWatch (press release)BETHESDA, Md., April 5, 2012 /PRNewswire via COMTEX/ -- The CF Foundation's "Adding Tomorrows" video selected from more than 1000 entries; to be featured on YouTube's homepage. The Cystic Fibrosis Foundation has been awarded "best video" in the ...and more »  
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Vertex shares soar on cystic fibrosis study
BOSTON (MarketWatch) -- Shares of Vertex Pharmaceuticals soared 44% to $54.00 on Monday after it reported positive early data from an on-going Phase II clinical trial testing its new drug Kalydeco with its experimental compound VX-089 in the treatment of cystic fibrosis. Vertex said the combination significantly improved lung function in patients who carry two copies of the F508del gene mutation, the most common mutation of the genetic...  
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Insmed: FDA Lifts Hold On Arikace Trial For Cystic Fibrosis
MedCity NewsInsmed: FDA Lifts Hold On Arikace Trial For Cystic FibrosisWall Street JournalInsmed Inc. (INSM) agreed to revise the cystic fibrosis trial population for its inhalable antibiotic, Arikace, and the US Food and Drug Administration has lifted its clinical hold on the potential treatment for CF patients with pseudomonas lung ...Insmed Incorporated Announces Lifting of Clinical Hold by U.S. Food and Drug ...MarketWatch (press release...  
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Proteostasis Therapeutics Announces Collaboration with Cystic Fibrosis...
Over the past decades, Scripps Research has developed a lengthy track record of major contributions to science and health, including laying the foundation for new treatments for cancer, rheumatoid arthritis, hemophilia, and other diseases. The institute ...  
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Joe Surf: Stand-up paddleboarding in fight against cystic fibrosis
For more information, go to NationalSUPday.com ... Hemmings will be introduced by her father, Fred Hemmings, who is Hawaii's first surfing world champion and a retired Hawaii state senator. The event will feature live music and a book signing ...  
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Amy-O-Meter: Getting Ready for the Cystic Fibrosis Foundation Great Strides...
I want to take the time to remind everyone about the Cystic Fibrosis ... our goal is to make sure no other family has to go through the years of treatments, operations and heart-ache that they went through. (They were lucky, however. Their youngest child ...  
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Clicking on the Web: Learn about cystic fibrosis online
Walks are scheduled for St. Peter on Saturday, May 12; in Rapid City and St. Cloud on Saturday ... page to read about the issues and learn how you can help. • Download the “Cure CF” iPhone App. Use it to educate potential new volunteers ...  
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Pasco family finds hope in battle against cystic fibrosis
Ray and Wendy Meddaugh tried for years to have their first child, Rachel, and when she was 16 months old they discovered she had cystic fibrosis. In the beginning, they only knew there was no cure and it was terminal. "We were devastated," Wendy ...  
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Savoring For Cystic Fibrosis
Cystic fibrosis is a chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States. The Central New York chapter of the Cystic Fibrosis Foundation will host the "Savoring for Cystic Fibrosis" event on ...  
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Bay City Central students raise money for cystic fibrosis research, throw...
The reward came Friday when the students got to throw water balloons at Principal Tim Marciniak, Athletic Director Morley Fraser and Assistant Principal Joe Buggs. The school raised $204 for cystic fibrosis research.  
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Man aims to raise awareness for cystic fibrosis research
WILMINGTON, NC (WECT) - A local man is speaking out about his fight with cystic fibrosis. Howell Graham was born with the condition, which makes it hard to breathe due to the buildup of mucus in the lungs. In 1990, Graham was one of the first 50 people to ...  
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Great Stides Walk- Cystic Fibrosis
Great Strides: Taking Steps to Cure Cystic Fibrosis is the Cystic Fibrosis ... and obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. In the 1950s, few children with cystic fibrosis lived to attend elementary ...  
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Cystic Fibrosis sufferer beats the odds to become award-winning bodybuilder...
Daily MailCystic Fibrosis sufferer beats the odds to become award-winning bodybuilder ...Daily MailJonny Simpson, 25, transformed himself from a seven stone weakling to win the title of 'Mr Athletic' 2012 and now has his sights set on becoming 'Mr Universe.' Weightlifter Jonny, a chef by trade, took up bodybuilding six years ago in a defiant bid to ...Jonny Simpson, cystic fibrosis sufferer, sets sights on Mr. Universe competitionYahoo! News...  
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Twins fight to defy Cystic Fibrosis death prophecy
Hayden Smith gets their story and looks at the continuing attempts to tackle the disease. Christine and Michelle are believed to be the oldest living twins with cystic fibrosis. Shortly after Christine and Michelle were born, their parents were told they ...  
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Cystic Fibrosis Awareness Month and What It Means to One CFer
Cystic Fibrosis is an inherited chronic disease that affects mainly the lungs and digestive system of about 30,000 children and adults in the US (70,000 worldwide).  A defective gene and its protein product cause the body to produce unusually ...  
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San Dimas couple running 4 marathons to raise funds for cystic fibrosis...
They're known as the Elizabeths, Bitsy and Beth, the nearly inseparable duo. Best friends since the first day of sixth-grade at Lone Hill Middle School, the two never, ever stop talking. Related story: Covina family adjusts to 'normal' life with cystic fibrosis  
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Living with cystic fibrosis
Their children's cystic fibrosis presented them with a lifestyle they never anticipated, but one they embraced as "the hand God dealt us ... Rachel is learning guitar. Right now, she plays an acoustic guitar with a lot of focus on the music ...  
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Vertex shares jump 60% premarket on new data for cystic fibrosis drug...
“There is a long term strategic aspect to today’s data,” Vertex CEO Jeffrey Leiden said on a conference call with analysts. “We are creating a unique business with multiple breakthrough medicines.” Kalydeco is currently approved for ...  
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Stem cell researchers move a step closer to a drug to control cystic fibrosis...
Harvard University stem cell researchers believe they have taken an important step toward development of a drug to control cystic fibrosis. Cystic fibrosis is a fatal lung disease that kills about 500 people a year in the U.S. The advance ...  
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Justin Verlander surprises 11-year-old cystic fibrosis patient during special...
For Hersh, no other athlete is as beloved as Tigers Cy Young winner Justin Verlander. As reported by the Detroit News and a variety of other sources, including Off the Bench, Hersh often wears Verlander t-shirts. Her friends on her baseball team all call ...  
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Vertex Shows Signs of Effect With Two-Drug Combo for Cystic Fibrosis
Doctors have made significant progress over the years through improved treatment of CF symptoms ... the amount of sweat chloride ions on the skin—which can be an early sign of a CF drug that’s working. But questions remain.  
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A One-Two Punch Against Cystic Fibrosis, And Maybe Someday Other Diseases Too...
The new combination pairs Vertex’s Kalydeco, a newly approved treatment for CF patients whose disease is caused by a rare mutation called G551d, with another pill called VX-809. Together, the pair of drugs are designed to help patients whose ...  
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Twins with cystic fibrosis become orgran donation advocates in film shown...
GRAND RAPIDS — The story of twin sisters with cystic fibrosis who receive life-saving lung transplants is told ... “I urge, and know, our community will rise up to the challenge of continuing to increase the donor registry numbers.”  
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Synteract and Rempex Partner in "Great Strides" Walk to Support Cystic...
(Logo: http://photos.prnewswire.com/prnh/20111108/MM02925LOGO) "Great Strides: Taking Steps To Cure Cystic Fibrosis" is the largest fundraising event held by the Cystic Fibrosis Foundation to raise money for CF research and care. Synteract and ...  
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Molecules Designed By Computer Point To New Therapy For Cystic Fibrosis
By developing software that uses 3-D models of proteins involved in cystic fibrosis, a team of scientists at Duke University has identified several new molecules that may ease the symptoms of the disease. Computer algorithms created by the team predict how well a given molecular structure will block a basic protein-protein interaction known to occur in cystic fibrosis. To test the predictions, the scientists synthesized the molecules and...  
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Necklace helps raise money for cystic fibrosis
It is a life-threatening disorder. The necklace was made to honor Birmingham, Alabama native, Brandi Thorpe. Brandi was diagnosed with cystic fibrosis at just five months old. Brandi spent a great amount of time helping to spread awareness of CF ...  
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23rd Annual Hot Dog Safari
Hot Dog Safari on Lansdowne Street Phantom Gourmet to host 23rd annual event benefiting the Joey Fund & Cystic Fibrosis FoundationOn May 19th, myTV38’s Phantom Gourmet will host the 23rd annual Hot Dog Safari. During this interactive day of family, food and fun, Lansdowne Street will shut down and area venues will band together to benefit the Joey Fund and the Cystic Fibrosis Foundation.This non-profit, all-weather event is packed with...  
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Walkers hope to find cure for cystic fibrosis
In many ways Max LaForge is a typical 8-year old-boy; he loves his mommy, daddy, friends, school and his action figures. Where: Siesta Beach, 948 Beach Road, Siesta Key. Contact: For more information or to make a donation, contact Cara Crowley ...  
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San Dimas couple running four marathons to raise funds for cystic fibrosis...
"So we had to explain that it wasn't because what Beth had would make her sick, it was because what she had could ... Dan, a sergeant with the Arcadia Police Department, and Janna, a software consultant who works from home, decided to take ...  
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Cystic fibrosis survivor tells triumphant tale in new book
“Here’s a woman with a terrible disease, but she’s so proactive,” said Maguire’s husband, Frankie Tedesco. “She amazes me. She lives life to the fullest.” Maguire isn’t sure she would have taken such leaps in business and life ...  
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Vertex earnings soar on hepatitis C, cystic fibrosis drugs
Vertex Pharmaceuticals Inc. of Cambridge earned nearly $439 million in the first quarter of 2012, which included net revenues of nearly $357 million from its hepatitis C drug Incivek and nearly $18 million from its cystic fibrosis drug Kalydeco ...  
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Experts hope discovery will help those with cystic fibrosis
WILMINGTON, NC (WECT) - A small team from UNC Wilmington believes it could have discovered the future of medicine, thanks to a toxin called Brevenal. The medicine is targeted for people with cystic fibrosis, a life-threatening disease that causes lung ...  
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CF builds funds and awareness through Great Strides
Seaway NewsCF builds funds and awareness through Great StridesSeaway NewsThe CF Great Strides Walk is May 27 in Lamoureux Park. To say great strides have been made to help battle Cystic Fibrosis is more than just a play on words. Sure, the Great Strides Walk is a wonderful way for Cystic Fibrosis Canada to create awareness ...Vertex's Experimental CF Drug Combo Shows PromiseWBURThe Paw Print: Cystic Fibrosis Foundationmy.hsj.orgFifth Graders...  
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Savara Pharmaceuticals’ AeroVanc for Cystic Fibrosis Patients Achieves...
AeroVanc (vancomycin hydrochloride inhalation powder) is a novel dry powder form of vancomycin in a capsule-based inhaler for the treatment of respiratory methicillin-resistant Staphylococcus aureus (MRSA) infections in patients with cystic fibrosis (CF).  
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Breathless Wonder: A New Legacy Of Hope For Cystic Fibrosis
Life can take your breath away. Sometimes in moments of awe and delight. Sometime with heart felt pain.   The San Diego Cystic Fibrosis Foundation’s Fourth Annual Ladies Luncheon managed to do both in one short afternoon. On April 5th, the foundation ...  
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May is Cystic Fibrosis Awareness Month
It is a multi-system disease that affects mainly the lungs and the digestive system. In the lungs, where the effects are most devastating, a build-up of thick mucus causes severe respiratory problems. Mucus and protein also build up in the ...  
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Volunteer Spirit: How to help add years to patients with Cystic Fibrosis
Father, Rod Jack says "In CF patients, it makes mucus in your body sticky, and nothing can flow properly properly through lungs, intestines, to clean them out." Jennifer adds, "When certain germs get in our lungs, we can get rid of them ...  
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EC Sanctions Pharmaxis’ Bronchitol as Add-On Therapy for Cystic Fibrosis...
Respiratory disease therapeutics firm Pharmaxis achieved EC approval for its cystic fibrosis therapy Bronchitol. It is indicated for use in helping to clear the airways of mucus as an add-on therapy to best standard of care. Clearance across the ...  
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Racing to cheat death: Murfreesboro man with cystic fibrosis competing in...
Born with cystic fibrosis and a diagnosis that his lungs would wither and quit in just 12 years, the Murfreesboro man will instead run his first marathon today at age 28 — still racing to stay ahead of a vicious genetic disease that ...  
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Covina family adjusts to 'normal' life with cystic fibrosis
When Beth was born, Candi had been running a day care center out of her home. The potential for exposure to germs meant Candi could not resume the day care center after her maternity leave. And anytime Beth gets sick, it puts the entire family on hold.  
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65_RedRoses,’ on OWN, Shows the World of Cystic Fibrosis
Ms. Markvoort’s struggles became well known through a blog ... have often been faulted for shamelessly sharing every detail of their lives with the world at large. Here is one case, though, where that instinct has been for the better ...  
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Gadsden-built race car being raffled to benefit Cystic Fibrosis Foundation
The car, a replica of the distinctive yellow 1963 Shelby Cobra driven by racing legend Allen Grant, will be given away June 23 at the 2012 London Cobra Show in Ohio. Raffle tickets cost $20 each.  
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Cystic Fibrosis Foundation, American Cancer Society, Sweet Adelines benefits...
A night of bingo called out by a couple of campy drag queens kept everyone in stitches at a grassroots fundraiser put on by one of 20 teams competing to raise the most money for the American Cancer Society's Relay for Life at the Boneyard in ...  
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24 Year Old Cystic Fibrosis Patient Needs Double Lung Transplant
If there's a chance or even a miracle, I'm going to do it," Thayer says. But despite the disheartening outlook, Thayer is remaining optimistic and isn't giving up the fight to live. "In spite of everything he's been through in his short 24 years ...  
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Vertex Hopes Two Cystic Fibrosis Drugs Better Than One
Cystic fibrosis is caused by genetic mutations that result in a malfunctioning or missing protein, known as CFTR, required for the regulation of sweat production, mucus, and certain aspects of digestion. Defective or missing CFTR proteins in lung cells ...  
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Parents Organize Cystic Fibrosis Fundraiser
BILLINGS - It is a genetic illness that strikes at least 30,000 children across the U.S., and a local couple is hoping their fundraising walk in July will help find a cure, not just for countless cystic fibrosis patients but for their own son as well.  
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65_Red Roses - Georgia Straight
Screening of the award-winning documentary that follows the journey of Eva Markvoort as she battles cystic fibrosis and waits on the transplant list for a new pair of lungs. Partial proceeds benefit Cystic Fibrosis Canada. More information at ...  
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Great Strides: Walking To Cure Cystic Fibrosis
What would you do if your child only had 30 years to live. The answer is simple. You would walk to the ends of the earth to find a cure. This Sunday, over 1,000 north county residents will attempt to do just that. On May 6th, families, friends ...  
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Researchers Uncover Genes at Fault for Cystic Fibrosis-Related Intestinal...
Researchers at Johns Hopkins have identified a gene that modifies the risk of newborns with cystic fibrosis (CF) developing neonatal intestinal obstruction, a potentially lethal complication of CF. Their findings, which appeared online March 15 in PlosGenetics, along with the findings of their Toronto-based colleagues, published April 1 in Nature Genetics, may lead to a better understanding of how the intestines work and pave the way for...  
From newswise.com ()
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Wine for a Cure, a Benefit for Cystic Fibrosis Research, Inc.
Cystic Fibrosis Research, Inc. is proud to announce the Fourth Annual Wine for a Cure to take place on Sunday, May 20th, 2012. This year, they will have a VIP Reception, followed by a special screening of the award winning documentary, The Power of Two.The afternoon will begin with a VIP reception, showcasing wines from the Livermore Valley and culinary dishes from a special tasting menu created by Kelly McFarland and Julie Racine of The...  
From pr-usa.net ()
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Why one bacterial infection is so deadly in cystic fibrosis patients...
The bacterium Burkholderia cenocepacia is harmless in healthy people but causes a severe and persistent lung infection in cystic fibrosis patients and is resistant to nearly all known antibiotics. The bacterium interferes with an important survival process in cells whose job is to fight infection. This phenomenon is even stronger in CF patients, new research shows.  
From sciencedaily.com ()
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The 3 Ballingarry’s Motor Bike Run in aid of Cystic Fibrosis
For more information please contact: John Baker 086 8697383; Liam O’Kelly 086 2675963; Valerie O’Kelly 086 2221746 Picture shows Bikers, Organisers & Friends of TLC4CF at the launch of the 3 Ballingarrys Motor Bike Run Sunday May 6th  
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Peterborough's 2012 Great Strides Walk for Cystic Fibrosis at Nicholls Oval...
Peterborough Petes general manager Dave Reid, left, is back as the honorary chairman of the fourth annual Peterborough Great Strides Walk for Cystic Fibrosis. The official launch for the walk was held Wednesda at sponsor East Side Mario's on Lansdowne St.[...]  
From peterboroughexaminer.com ()
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Research shows why one bacterial infection is so deadly in cystic fibrosis...
Research shows why one bacterial infection is so deadly in cystic fibrosis ...Phys.OrgCystic fibrosis is a chronic disorder characterized by a buildup of mucus in the lungs and other parts of the body, and various types of lung infection are responsible for about 85 percent of deaths in these patients. The Ohio State University ...Research shows why 1 bacterial infection is so deadly in cystic fibrosis patientsEurekAlert (press release)all 6...  
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Johns Hopkins researchers uncover genes at fault for cystic fibrosis-related...
Researchers at Johns Hopkins have identified a gene that modifies the risk of newborns with cystic fibrosis (CF) developing neonatal intestinal obstruction, a potentially lethal complication of CF. Their findings, which appeared online March 15 in PLoS Genetics, along with the findings of their Toronto-based colleagues, published April 1 in Nature Genetics, may lead to a better understanding of how the intestines work and pave the way for...  
From eurekalert.org ()
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Computer-designed molecules point to new therapy for cystic fibrosis
Computer-designed molecules point to new therapy for cystic fibrosisR & D MagazineBy developing software that uses 3-D models of proteins involved in cystic fibrosis, a team of scientists at Duke University has identified several new molecules that may ease the symptoms of the disease. Computer algorithms created by the team predict ...Cystic Fibrosis Goes 3-DdailyRxall 5 news articles »  
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Research Shows Why One Bacterial Infection is so Deadly in Cystic Fibrosis...
The bacterium, Burkholderia cenocepacia, causes a severe and persistent lung infection in patients with CF and is resistant to nearly all known antibiotics. Cystic fibrosis is a chronic disorder characterized by a buildup of mucus in the lungs and other ...  
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Cystic-fibrosis fight personal for Chandler woman
Amy McCloud has a deeply personal connection with cystic fibrosis. The Chandler resident grew up watching her brother, Alan Griffin, fight the disease, a genetic condition that leads to serious lung infection and premature death. In 1984, at age ...  
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Cystic fibrosis doesn't slow Mary Kay superstar
Improved treatments that target the faulty genes are helping CF patients live longer. Dr. Kimberly Jones, a lung specialist with LSU Health Shreveport, said even better drugs are on the horizon. “The new drugs are gene modulators. They fool ...  
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In Newborns With Cystic Fibrosis, Gene Variations Linked To Intestinal Blockage
University of North Carolina at Chapel Hill researchers working as part of the International Cystic Fibrosis Consortium have discovered several regions of the genome that may predispose cystic fibrosis (CF) patients to develop an intestinal blockage while still in the uterus. A report of this international study appears online in the journal Nature Genetics...  
From medicalnewstoday.com ()
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Savara's AeroVanc for Cystic Fibrosis Patients Achieves Positive Results in...
Austin, TX, April 26, 2012 Savara Pharmaceuticals, an emerging specialty pharmaceutical company developing innovative pulmonary drugs for the treatment of serious and life-threatening conditions, today announced top-line data from its Phase Ia clinical study of the companys AeroVanc inhaled antibiotic. AeroVanc (vancomycin hydrochloride inhalation powder) is a novel dry powder form of vancomycin...  
From rss.biospace.com ()
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Quality Improvement for Sweat Testing for Cystic Fibrosis: Discussion...
This study demonstrates the use of a QI program designed to reduce QNS rates in sweat testing in all age groups. Because newborn screening will result in an increased need for sweat testing in infants, the challenge of obtaining an adequate specimen from ...  
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Fundraiser for cystic fibrosis planned at Esu
An event to raise money and awareness for cystic fibrosis and honor a local child with multiple ties to Emporia State University is set for Tuesday  
From emporiagazette.com ()
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Pharmaxis shares soar after Europe approvesl its cystic fibrosis medication...
Bronchitol, a remedy discovered in an Australian laboratory and manufactured in Sydney, helps to clear the airways of cystic fibrosis sufferers. Without a lung transplant, many sufferers are not expected to live to middle age. But Bronchitol helps improve ...  
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Narberth Runs for Cystic Fibrosis
Organized by siblings Ame Austin, Molly McBryan and Matt McCloskey, who has CF, the mission of the Run is simple: to fulfill the wishes and dreams of children living with CF and give them respite from the daily turmoil inflicted by this disease.  
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Computer-designed molecules point to new therapy for cystic fibrosis...
The best computer-generated molecules also bind more efficiently to CAL than any previously reported inhibitor. In a culture of human cells with the cystic fibrosis mutation, the best algorithm-generated inhibitor increased CFTR activity by 12 percent.  
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Teen battles cystic fibrosis: Sophomore Bart Kelly keeps hopes high, stays...
Making new friends Bart had already begun working with magic himself. He'd met a man at Bojangles ... Such a large crowd gathered that security broke it up, and Bart's cards got confiscated for the day. "I've learned my lesson about doing ...  
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Video: Narberth Runs for Cystic Fibrosis
Organized by siblings Ame Austin, Molly McBryan and Matt McCloskey, who has CF, the mission of the Run is simple: to fulfill the wishes and dreams of children living with CF and give them respite from the daily turmoil inflicted by this disease.  
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