Fibromyalgia

Fibromyalgia

Fibromyalgia is chronic pain, stiffness, and tenderness of muscles, tendons, and joints without detectable inflammation. Read news and share stories about how to detect and treat fibromyalgia.

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Written by friendslove84 on
The fibro/food connection Fibromyalgia is a chronic condition whose symptoms include muscle and tissue pain, fatigue, depression, and sleep disturbances; it often mimics or appears together with other chronic conditions such as irritable bowel syndrome (IBS), lupus, and arthritis. "There are usually other things that are triggering it, so you have to individualize treatment for each patient," says Daniel Arkfeld, MD, an associate professor of clinical medicine at the Keck School of Medicine at the University of Southern California. Because it is such a complex condition, fibromyalgia is difficult to treat. Medication tends to reduce symptoms only by about 30% to 50%. Many patients ... Read Full Story
WASHINGTON (Reuters) - A virus linked to prostate cancer also appears to play a role in chronic fatigue syndrome, according to research that could lead to the first drug treatments for a mysterious disorder that affects 17 million people worldwide. Researchers found the virus, known as XMRV, in the blood of 68 out of 101 chronic fatigue syndrome patients. The same virus showed up in only 8 of 218 healthy people, they reported on Thursday in the journal Science. Judy Mikovits of the Whittemore Peterson Institute in Nevada and colleagues at the National Cancer Institute and the Cleveland Clinic emphasized that the finding only ... Read Full Story
Chronic Fatigue Syndrome has been stigmatized as a yuppie disease, womens disease or psychological disorder in part because its cause was unknown and its inconsistent symptoms made it difficult to diagnose. But a discovery by the fledgling Whittemore Peterson Institute, a medical research center based at the University of Nevada, Reno, may change the worlds view of the disease. Scientists there, drawing international attention, have discovered a link between a blood-borne virus and Chronic Fatigue Syndrome. For the first time, scientists can point to a possible cause of the disease, which could blaze a trail for its treatment. Its definitely a milestone in this ... Read Full Story
Written by barbarany_9 on
Living with an invisible disability isn't easy. Living with any disability can be soul-wrenching. But the invisibly disabled get a special sort of prejudice and disdain from the healthy public that has to be one of the circles of Dante's hell. Hard enough that we have to go through rounds of doctors to finally ferret out what is wrong with us; only to be accused of doctor shopping . But when we finally are diagnosed, many of us have to give up our dignity, our dreams and a lot of people we considered friends don't stick around too long, either. Yesterday I had to ... Read Full Story
From:   www.afp.com
Chronic Fatigue Syndrome (CFS), a mysterious and debilitating exhaustion that is not relieved by sleep, appears to be linked to a retrovirus, researchers announced Thursday in a breakthrough study. In the latest issue of Science, researchers said their findings could lead to a treatment for an ailment affecting millions of Americans and that in some cases render them unable to work or engage in even moderately robust activities. The study was hailed as a breakthrough in understanding the perplexing syndrome for which there is no known treatment. "We now have evidence that a retrovirus named XMRV is frequently present in the blood of patients ... Read Full Story
How are you feeling, post-Christmas? It's an exhausting day even for healthy people, and for those of us with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS), it's almost guaranteed that we're going to crash afterward. I say that not because I'm a pessimist, but because I'm a planner. For instance, I have a day-planner program on my computer that helps me stay on track (otherwise, it all gets lost in the fog!) The day after...  
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The holiday season is especially difficult for those of us with chronic illnesses like fibromyalgia and chronic fatigue syndrome. To help you get through it, here's an index of holiday resources for you: Holiday Depression Survive Holiday Shopping Stop Before You Want to Stop Food Sensitivities Alcohol Intolerance Christmas-Day Gameplan I hope you have a Merry Christmas! Learn more or join the conversation! NEWSLETTER | FORUM | BIO...  
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Holiday Blog Classic: Cutting Down on Stress We're getting close to Christmas, and (as usual), I'm feeling a bit overwhelmed. I still need to do lots of wrapping, a bit of baking, and stocking-stuffer shopping. I'm tracking the packages I've shipping to far-off family and hoping no freak storms disrupt their delivery (like they did last year.) I'm not doing too badly, though, considering. Why? Because I have a schedule, and I'm trying my...  
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Background: We aimed to review systematically the needs for support in managing illness and maintaining social inclusion expressed by people with chronic fatigue syndrome/ myalgic encephalomyelitis (CFS/ME) Methods: We carried out a systematic review of primary research and personal ('own') stories expressing the needs of people with CFS/ME. Structured searches were carried out on Medline, AMED, CINAHL, EMBASE, ASSIA, CENTRAL, and other...  
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The Food and Drug Administration has rejected Hemispherx BioPharma’s new drug application for Ampligen, an experimental treatment for chronic fatigue syndrome that the biotechnology company has spent more than three decades developing and testing.  
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Google Maps being used by CFS/ME and Fibromyalgia sufferers to raise awareness of the disease. The Web 2.0 resource utilized following finding of new XMRV retrovirus. PR Log (Press Release) – Dec 05, 2009 – Spurred on by new research suggesting a link between Chronic Fatigue Syndrome (CFS/ME) and a new retrovirus, XMRV, sufferers have turned to Google Maps to create a global picture of the disease. The map, http://xmrv.me.uk/me-cfs-global...  
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Chronic fatigue syndrome (CFS or ME/CFS) is still without any FDA approved treatments -- Hemispherx Biopharma Inc. says the FDA has rejected its New Drug Application for Ampligen. Ampligen is an immune-system modulator that has languished in the experimental stage for more than 30 years. Many people who've taken it for ME/CFS say it changed their lives, while others say they were disappointed in the drug. Ampligen currently is being...  
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