Fibromyalgia

The flu vaccine topic is always controversial among those of us with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS), and H1N1 added a whole new layer to that this year. The big fear with the regular seasonal flu vaccine is that it triggers flare-ups in some of us, so the debate is whether a possible flare is worse than the illness -- adding to the mix that the flu typically hits us harder and longer than it does healthy...  

The journal Science published a report Oct. 8 that may bring hope to sufferers of Chronic Fatigue Syndrome — but that also has implications for the blood supply. - The article by researchers from Reno’s nonprofit Whittemore Peterson Institute, the National Cancer Institute and the Cleveland Clinic, is titled “Detection of an Infectious Retrovirus, XMRV, in Blood [...]  

Researchers at the Whittemore Peterson Institute, Reno, have discovered a strong link between retrovirus XMRV and Chronic Fatigue Syndrome The Whittemore Peterson Institute, Reno, USA recently discovered a strong link between retrovirus XMRV and Chronic Fatigue Syndrome, or ME as it is also known. Their findings are some of the most significant in recent medical history, especially for the millions of ME/CFS patients worldwide, who have...  

The XMRV Research Series The discovery of a possible retroviral connection to chronic fatigue syndrome (CFS or ME/CFS) isn't just stirring up the ME/CFS community -- it's getting the attention of the entire scientific community. That's quite a feat, considering how ME/CFS research has languished due to lack of funding and interest. Now, however, XMRV is changing things. 75 XMRV researchers are getting together in Chicago this week to share...  

Chronic fatigue syndrome is a debilitating disease that is thought to affect between 100,000 to 250,000 people in the United States alone.Contributor: Rye CatcherPublished: Nov 12, 2009  

A free health seminar Saturday at Midland College will provide information to attendees about the help available for those living with or diagnosed with a chronic illness, chronic fatigue syndrome or fibromyalgia.  

PatientsLikeMe, the leading online community for people with life-changing conditions, announces the expansion of its fibromyalgia community to welcome patients with chronic fatigue syndrome (CFS), also know as myalgic encephalomyelitis (ME).  

Most people have probably never heard of the virus XMRV, but it's been a hot topic in the healthcare community since last month. That's when scientists at the Cleveland Clinic were among a group of researchers that discovered a possible link between that virus at chronic fatigue syndrome. Dozens of the top scientists nationwide studying XMRV are flying to Cleveland for a meeting at the Clinic Wednesday. For this week's Tuesday Checkup...  

I think we all know a few people who've been hit with the flu this year, both the seasonal one and H1N1 (swine flu). It's kind of a no brainer that the flu would hit those of us with fibromyalgia and chronic fatigue syndrome harder than it does most people -- what doesn't? Treating the Flu If you suspect you have the flu, get to the doctor early on and talk to him or her about the drugs Tamiflu (oseltamivir) and Relenza (zanamivir). They're...  

Dr. A Martin Lerner: Thoughts on XMRV (Updated), Ampligen In my recent conversation with Dr. A. Martin Lerner, a former chronic fatigue syndrome sufferer who says he used his specialty in infectious diseases to find treatments for himself and others, I asked him about both the XMRV discovery (which was just days old at the time) and also about Ampligen, the proposed chronic fatigue syndrome drug currently awaiting FDA approval. XMRV XMRV is a...  

Okaaaaaay... *squint* Let me preface this post by stating that I am not an MD. I dont care, particularly, about whether CFS is a 'real' disease or psychosomatic or a catch-all category for people MDs dont know how to treat. Sorry. So if you want to bitch about CFS, pro or con, dont do it in this post. What I care about is retroviruses. The behavior of this retrovirus in humans does not make sense as a causative agent for CF or prostate...  

So, maybe we're not all slackers. Maybe it's not all in our heads, as many employers, psychiatrists, friends and even family members have implied or thought to themselves over the years. Maybe the debilitating set of symptoms known as chronic fatigue immune dysfunction syndrome is a legitimate il...  

Hello, I am new to LiveJournal but not new to Fibro.I have been diagnosed for 6 years.and I absolutely despise this illness. I have a situation with the Fibro and my doctors have never heard of this before. I can't think how it could be either (I was a nurse for 20 years before I got diagnosed). For a few years before being diagnosed, I had problems with fluid retention in my legs. I thought it was from being on my feet for so many hours.  I...  

By now the news that chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), has been linked to a newly discovered retrovirus known as XMRV. Researchers from the Whittemore Peterson Institute (WPI) at the University of Nevada and the Cleveland Clinic just published their finding in the journal, Science.... more  

I was diagnosed with fibromyalgia about 5 years ago after many years of wondering why I always had this muscle drain feeling all over my body, aches that I couldn't explain, any time I got poked or ran into something not even very hard but causing me excruciating pain. Feeling tired all the time but forcing myself to go to work every day because I had to pay bills somehow.So, about 2yrs ago, my Dr had me try a medication called Neurontin. It...