Parkinson's disease

Parkinson's disease

Parkinson's disease is the second most common degenerative nerve disorder (after Alzheimer's) in the U.S. This is a community zine about Parkinson's disease with blogs, videos, and photos. According to Wikipedia.org: Parkinson's... [more]

Parkinson's disease is the second most common degenerative nerve disorder (after Alzheimer's) in the U.S.

This is a community zine about Parkinson's disease with blogs, videos, and photos.

According to Wikipedia.org: Parkinson's disease is a degenerative disorder of the central nervous system that often impairs the sufferer's motor skills and speech.

You’re going to do what?

Before PD I was never one to sit around, taking what ever life dealt to me; if there was a challenge to be risen to, I was the one who rose to it. I didn’t care if the odds were a million to one against me, I had too much stubborn pride to give in without a fight.

That was then…this is now.

For the last several months I have had some rather serious set backs with my PD - basically the meds I was taking for the disease were beginning to scramble my mind, delivering what I initially perceived as a knockout blow (see the post “Mr. Potato Head - Is this really happening to me?”)

I gave up. If PD was my enemy, Mr. Depression was fast becoming my best friend, soothing me with the numbing coldness of his touch as he wrapped his arms around my shoulder, whispering words in my ear in a language only someone who has an intimate personal relationship with depression can truly understand.
The problem is, I was looking at the whole situation totally back-ass-wards. Although PD is not my friend, it is not my enemy either. It is merely a situation I have to cope with, an obnoxious passenger riding the same bus that I am on. As for Mr. Depression, well…thankfully I came to my senses and saw him for the con-man he is, the liar he has always been.

The key point anyone with PD, or anyone close to someone with PD needs to remember, is the fact that we are not alone. There are millions of people going along for the very same ride. When it comes to PD, we have two major decisions that we need to make:

  1. How are we going to treat the disease - there are many, many different medicines and techniques available to chose from, and what works for one person might not work for the next. This is the hardest decision by far, that we will have to make, if for no other reason than we will have to make it many times over along the way.
  2. Are we going to just sit back- complaining about every little bump in the road, getting bored out of our minds as we watch the scenery passing by out the window? Or are we going to take the wheel and drive the bus ourselves?

Personally, I prefer to take the wheel. I may end up driving the wrong way down a one way street a time or two, but I will certainly enjoy the ride, especially as I look back in the rear view mirror and see the look of terror on PD’s face as he hangs on for dear life…

With that in mind, I am going to begin providing links to blogs, news clips, stories about people with PD, or those who have been affected by people with PD who have also chosen to drive their own bus, doing the unexpected, or perhaps even the impossible. The links, and/or excerpts will be given their own page (at the top of the blog) entitled “You’re doing what?!?”

So, sit back, buckle up, and enjoy the ride!

Please remember, however, if your driving the bus it might be fun to hit the gas, but sometimes you might need to use the brakes too.

Please look for the first post on the new page tomorrow.

©2008 Day By Day Adventures Of The PD Warrior. All Rights Reserved.

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