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….resutls from Scope
We finally received the results from the scope and they are good and they couldn’t find anything concerning. So that is really good but on the other hand Sebastien still has some blood at times in his stool and we are praying really hard that this is going away and Sebastien stays healthy and strong. We challenged the medical Team to still investigate more as there is a part of the bowel that they can’t reach with the scope and we have to be so proactive and make sure we are on to... Read Full Story
going to the OR for Endoscopy
Past Tuesday Sebastien had to go for an Upper and Lower Endoscopy to take some Biopsies from his stomach as well as from his small bowel and from his large bowel to investigate why Sebastien still sometimes has blood in his stool from time to time which drops his hemoglobin at times and ensuring that there is no ulcers or other causes for his blood in his stool. Sebastien was on steroids just a few months ago and the side effect of them is getting ulcers which can bleed.  So here we went aga... Read Full Story
…of to school a dream come true
…. how time flies and Sebastien is now off to school, the picture shows him getting ready in the morning for school and he always carries his little pump ( black backpack) with him which is his feeding pump. He loves school and he really enjoys the company of the other childern, learning new things every day, going to gym class, story time, songs etc…… He has a wonderful nurse at his side at school as well as a Teachers Aid that supports Sebastien in the class. Monday, Wedne... Read Full Story
Ahoy Pirates…..
This is Sebastien’s 3rd year transplant celebration  as well as GIFT OF LIFE CELEBRATION with his little friends dressed up as pirates ……. what a wonderful afternoon Sebastien had surounded by the people that love, pray and support him soooooooo much….. it is actually the first CELEBRATION  that Sebastien actually felt able to be a child and enjoyed playing with his little Pirate friends and the wonderful people that came out to show their love to Sebastien and his spe... Read Full Story
…. visit of Marc and Dani and car for Sebastien
……. after David’s trip to Iowa to attend his brothers  Dominiques wedding to his lovely wife Nicole it was time for me to challenge the trip to Winnipeg to pick up our car as Sebastien will start school in September in a french speaking school here in Toronto and it is nearly impossible to get there without having a car…. so the hard decision was made to bring down our car as Sebastien will go in the morning to school and then around 1 he will leave to go to his dialyi... Read Full Story
…… family from Austria
Our Visitors from Austria/Kotschach left my siter Birgit, Lisa, my godmother Elisabeth and then me and Sebastien in the stroller….. David was so nice and took the picture….. xoxoxo Thanks so much to my family and Sister Birgit and Lisa as well as my cousin Elisbabeth for coming to see us it means the world to me…. thanks David and Normand for communicating with them and for keeping it a suprise and for Carolyn who helped us getting to the Zoo …. Liebe Birgit und Lisa ... Read Full Story
Lisa and SEbastien – at the Zoo facepainting……
Suprise Visit from Austria……
It was a hectic morning, the sun was shining and it was the 10 th of June, Jasmina’s 30 birthday as well as Sebastien’s orientation morning at his school…. well I was bringing Sebastien to his future school all nervous and sick to my stomach hoping all goes well and trying to race back for 2 o’clock for Sebatien’s dialysis session as it had to be switched to the afternoon for that day to accomodate his orientation at his school…. so everything went just wel... Read Full Story
more pics from Sebastien’s Junior Kindergarten Graduation
This is Sebastien in the middle and on the lef is his teacher Kathy and on his right is his favorite Clown Alibu This picture was also taken on his Graduation Day and the Clown came to join Sebastien’s special day, the therapeutic Clown comes every Wednesday and visits Sebastien for about 30 minutes and Sebastien just loves playing with him and just be silly and have time to be a child as well as makes his Dialysis session fun as they go on Rocket ship adventures, pretend to do all so... Read Full Story
Sebastien’s Junior Kindergarten Graduation
….. from Junior Kindergarten at the Sick Kids Hospital in Toronto, this was such a wonderful gift to see our son Sebastien achive his first year of schooling and for some families this is just what kids are supposed to do, they are supposed to grow up, be a child and go to school but this is sometimes not the reality for everyone especially if life gives you the road to travel on like we did, the many hospital stays, the hope that was cruched that our son would never walk, never be able... Read Full Story